A sneak peek into my next three posts, whenever I can get to them…
It was a little over a year ago I wrote this post about my early adventures in making Ava’s food from scratch instead of giving her cans of Pediasure, which was not working well for us. This morning I went to get something out of the freezer (which is working great again!), and suddenly realizedContinue reading “Blending like a pro.”
What I need to do is create my OWN paperwork for Ava, where I can tell people what I think they actually need to get to know her.
People often ask how Isaiah is doing, and I feel like typically everyone wants me to just say he’s fine, because he seems, well, fine.
A year ago, Ava got her feeding tube. As crazy as things are right now, I’ve thought so many times lately how great it just to not be THERE.
So how is Ava’s new blended diet going so far? Well, this happened: Yes, that’s our ceiling, courtesy of Melissa Burton an incredibly kind friend who’s been helping with Ava’s new feeds. You could say it’s been a smashing success: Yes, that’s Gerber chicken and gravy, 2.5 ounce jar. This one was my fault courtesy of someone besidesContinue reading “Blended diet, week one.”
Sure, Ava has Angelman Syndrome and hearing loss, but our biggest challenge overall has been helping her to eat. We’re almost a year into her feeding tube, and it’s been a good step forward. But after 4 months of reflux and trouble keeping her formula down, it’s time to step out behind the ease ofContinue reading “Baby steps with baby food”
It’s so hot here. This afternoon I was wrestling with a car seat in an unshaded therapy office parking lot at 4pm…no rain today…and I felt like I was going to melt right onto the pavement. I don’t know what that has to do with anything, but sometimes it’s just the first thing you thinkContinue reading “August in our world”
Delivery date: March 7, 2016 Today’s date: June 6, 2016 13 weeks 91 days 2184 hours Over 4.5 ponds gained Oxygen, caffeine, tests, vaccines Countless trips back and forth to Winnie Palmer for mommy and daddy… And finally… ISAIAH IS COMING HOME!!! Thank you all so much for your prayers, words of encouragement, meals, helpContinue reading “The day has come”
It’s been a busy week here at the hospital (and of course, at the Slezak house, too). We don’t have a discharge date and probably won’t until its just about to happen, but we are on the home stretch. Isaiah’s been eating on his own since he last pulled out his feeding tube Saturday, andContinue reading “Home stretch”